Well researched

I was asked to review this by the Nursing Times Journal.

What was it like?

I have heard of this condition but not seen many books about this condition. Hereditary Hemorrhagic Telangiectasia (HHT)
The author has researched this subject well as she herself suffers from this disease.
It is quite easy to misdiagnose this – and people do not know they have this with a tiny percentage 10-15% who are diagnosed correctly. This is not just a “nosebleed disease”
It is slightly unfair to state that this is misdiagnosed as it is uncommon, and specialists may never have seen this. The symptoms can be attributable to other problems.
This is book to help suffers and to gain and understanding and how to manage this.

What were the highlights?

The author is writing this as she herself suffers from this. The reader will not find this book difficult to read as the author writes well and paragraphs are in sections so if the reader needs to find an aspect they need to read about they do not need to spend time needlessly going through unnecessary material.
There is a well set out glossary which is valuable in order to understand abbreviations and medical jargon.
The resource section is useful, but readers need to be aware this is written for the USA audience. Saying that it is to be noted there is a Facebook Group in Ireland which may be useful and readers worth joining to find UK members or a link to UK resources.

Strengths & weaknesses:

This is a well set out book for HHT sufferers or those who feel they may have the disorder. Although written for the USA this equally apt for the UK reader. It certainly would be that starting block to go to your clinician and say I think I know what is wrong with me.

I found no weaknesses in this excellent text book.

Who should read it?

All Physicians, Emergency Department Team, GPs and patients and their families.